One measly tick changed our lives when it bit my husband and infected our lives.
While on vacation in Virginia to celebrate my in-laws’ 50th wedding anniversary, Dave discovered a tick in his waistband. Our response was anything but alarm because we are good midwesterners. We knew how to remove ticks; simply apply a hot match, and the sucker will back-out.
A month later, at my sister’s wedding reception dinner, Dave was suddenly as red as an explosive fire-poker. He flushed with a high fever, flamed with aching limbs and joints, and conceded to a killer headache.
Days later he did improve, but it was the unbeknownst, first indication. Months later, after describing Dave’s unpredictable health issues, a friend suggested he might have Lyme Disease. The doctor consulted the CDC for recommendations and prescribed two-weeks of doxycycline antibiotics. Instantly, his health improved, but the treatment was ineffective long-term. His unreliable health returned as quickly as Colorado weather changes and forecasted the tangled firestorm of Lyme.
Our bewildering journey has consisted of and been muddled by many doctors and many treatments, from holistic herbs to a spinal tap and medical IQ tests, to acupuncture and ozone-infused blood and bowel treatments, and others I cannot recall.
Through the storms I have learned many levels of acceptance.
My first acceptance was slowing-down because my exuberant energy exhausted him more when he felt listless, confused, and ill.
I’ve accepted it isn’t sensible to make plans because we will likely cancel, no matter the commitment.
I’ve accepted going to social events alone, usually explaining Dave’s latest conditions.
I’ve accepted I cannot sustain my current level of involvement in anything because I have to do everything. I’ve accepted a dirty house, dirty laundry, and dirty dishes; I’ve accepted duties and chores unfulfilled.
I’ve accepted some friends and family members do not understand; I’ve accepted their silence. I’ve accepted an isolated, lonely, solitary life.
I have accepted he may never be cured; I’ve accepted I live with a shell of the man I love and married.
I’ve accepted he tires of new treatments and sometimes doesn’t want to continue experiments.
I’ve accepted the unpredictable. I have accepted the constrictions.
I’ve accepted his long hours of sleeping; I have accepted the darkened quiet of our house.
I have uncomfortably adapted to unfitness, sadness, and depression.
I have reluctantly learned to live without expectations.
I have accepted I’m our lifeline, but without him I would not survive.
A Midwest native, Lara has lived in Colorado for over 20 years. She earned her Masters at CU Boulder and recently completed 18 post-graduate credits from CSU. She is in her 19th year of teaching English and currently teaches high school and college-level courses in a rural community. She and her husband Dave live on a ranchette in NW Colorado with their 2 dogs, 2 cats, and a menagerie of four-legged kids. She’s enjoys ranching, horseback riding, gardening, and cooking.
Lara – Thank you for sharing your story. I’m so sorry that your lives have been changed to the extent that you describe. We so badly need others to come alongside during times like this. It made me sad to read, “I’ve accepted some friends and family members do not understand; I’ve accepted their silence. I’ve accepted an isolated, lonely, solitary life.” A very hard place to be. I pray that God will send people to surround you as you traverse this difficult journey. Again, thank you for sharing from your heart. I pray that your husband’s health improves greatly as time goes on.
Such hard acceptance of what you did not sign up for. That is a theme that has surfaced for me as I often think I am the one responsible for all things and all circumstances and could somehow have prevented whatever the shatter is or was. Sometimes it’s just the shatter. As a Virginian I know the threat of tick bites and Lymes well. I know many who suffer. Thank you for the reminder of the reality they live with and for your honest sharing of what your acceptance looks like.
Lara, I thank you for sharing your heart with such honesty. I have recently struggled with changes in our life, and many losses. It was humbling and encouraging to hear such resolve in your statements of acceptance. I sense that your acceptance is truly that and not tolerance, its cheap imitation. I think tolerance is worked up in our flesh, and acceptance comes from trust in our Lord and surrender. You are an inspiring example for me. Thank you.
Lara….your reality breaks my heart. Is it true…that Lyme disease comes from ticks on deer? I am furious with our lives infested with deer in our yards and roads. I am so, very sorry. Bless and I pray that Dave will be renewed to health. Going to pray for you right now….
Lara,
Thank you for sharing your story. Your story causes me to pause and pray, to pray for you and for me. Praying you will fine new ways to connect to God and to your husband. Praying that somehow a miracle would come into your husband’s health. And praying for myself that I would enjoy every day. To be full of gratitude for the many, many blessings I enjoy daily. Asking God to bring others into your life to speak truth and hope and love into your life. Again I thank you for sharing your heart.
Coincidentally, I got Lyme disease while I was in Michigan for my parents’ 50th wedding anniversary. I was living in Philadelphia at the time and knew about ticks–and was terrified of Lyme. I protected myself when hiking–or even in the yard. But, Michigan? I did not know there were deer ticks there, so I went hiking and sat in the grass. I was fortunate that my long-term impact has been minimal, but every time my joints ache, I think of those who have it so much worse. I am so sorry for your husband’s situation and for how it has impacted both of your lives.
Lara – I am deeply saddened by your journey, but my eyes light up at one fact, you are both together. Not apart, together. That’s a powerful thing. It may be painful at times, but it’s special nonetheless. I was diagnosed with Lyme Disease at 15. I wasn’t treated consistently with an effective treatment. No one we saw knew what to do. Now, I live with a paraneoplastic encephalopathy. Some homeopaths I’ve seen say it’s stems from the initial bite. Lyme Disease is devastating but those who are afflicted need to know it is an entry level disease. It constantly changes and morphs into different things so always keep up with current blood tests. I never want to see others in similar shoes and can relate to the mourning of feeling isolated. People mean well, but they don’t understand. My prayer for you and your family is to live a full happy life. https://abigailclemmons.com